Publications
Publications, clinical care guides, and educational resources advancing care for ME/CFS, Long COVID, and related conditions.
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Listen. Believe. Do No Harm
A practical guide to caring for people with severe ME/CFS, emphasizing the importance of listening, believing the patient experience, reducing unnecessary exertion, and adapting care to each person’s functional capacity and symptom tolerance. The article highlights how even routine healthcare activities can contribute to exertional load and offers guidance for providing more supportive, individualized care.
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Bateman Horne Center Clinical Care Guide
Contributing Author
This guidebook serves as a practical resource for healthcare professionals seeking to better understand, diagnose, and manage ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs).
Published May 2025
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Work: A Journal of Prevention, Assessment, & Rehabilitation
Author and Guest Editor
Special Edition on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID
DOI: 10.3233/WOR-236013
Published April 2023
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Work: A Journal of Prevention, Assessment, & Rehabilitation
Guest Editor
Special issue on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID.
Work, vol. 74, no. 4
Published April 2023
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Letter to Providers
Caring for People with Severe ME/CFS
December 2022
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Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Healthcare 2021, 9(10), 1331; https://doi.org/10.3390/healthcare9101331
October 2021
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Work: A Journal of Prevention, Assessment, & Rehabilitation
Author and Guest Editor
Research, recommendations and lived/personal experience with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
DOI: 10.3233/WOR-203179
July 2020
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Work: A Journal of Prevention, Assessment, & Rehabilitation
Guest Editor
Special Edition on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
WORK, vol. 66, no. 2
July 2020